A NATIONAL MOVEMENT FOR EARLY SUPPORT
We are building a national, non-party-political movement for needs-led mental-health and wellbeing support before, during and after assessment. Early intervention works. Early intervention is key.
Founded by LilyAnne’s Wellbeing. Led by lived experience.
THE CAMPAIGN ASK
Reducing assessment waiting times matters. But waiting better matters too. People should be able to access appropriate, needs-led support based on what they are experiencing—not only after a diagnostic decision.
We are not asking charities to diagnose. We are asking government, NHS bodies and local systems to ensure mental-health, wellbeing and community support is available before, during and after autism and ADHD assessment.
Early help can protect wellbeing, reduce isolation and prevent needs from becoming more severe.
Mental-health and wellbeing needs should be recognised separately from diagnostic status.
Policy and services should be designed with autistic people, people with ADHD and those who know what waiting feels like.
OUR NATIONAL POLICY PROPOSAL
At the point of referral, everyone waiting for an autism or ADHD assessment should receive a clear support offer. The guarantee is built on five principles: no diagnosis required for basic wellbeing support; a Waiting Well offer for every person referred; mental-health needs considered separately from diagnostic status; community and voluntary organisations included in pathways; and services designed with lived experience.
01 · ACCESS
People receive information and routes to appropriate support when referred—not years later.
BACK THE PRINCIPLE02 · PREVENTION
Support should respond before distress, burnout, loneliness or everyday pressures become a crisis.
JOIN THE MOVEMENT03 · PARTNERSHIP
Government, NHS bodies, communities and charities should work together around need.
WORK WITH USPHASE ONE · BUILDING THE MOVEMENT
Invite people awaiting or reflecting on assessment to share what support they received, what was missing and what would have helped.
Bring together lived-experience voices, charities, professionals, researchers and parliamentarians around the principle.
Turn the evidence into a national policy proposal, parliamentary engagement and a public letter delivered to Downing Street.
BE PART OF WHAT HAPPENS NEXT
Phase one is beginning. Sign up for campaign updates, opportunities to share experience, coalition news and the next steps towards Westminster and Downing Street.
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